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Profile picture for Becky, Volunteer Mentor @becsbuddy

@venture Seems like being a perfectionist really works for you! You have controlled your T1D very well. Did it take awhile to understand EPI and make the 2 works for you?

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@becsbuddy
Once I was diagnosed, I knew more than my Drs. as to proper amount of Creon. I am at the severe end of the test and they prescribed me ONE 24000 pill per meal. That obviously was not enough and due to this mess up I had many dangerous hypoglycemia episodes. And I did research and told the Dr , “per the Creon guide this is not correct!” As stated before, went to a different gastro Dr after that was corrected to proper qty of Creon. It took weeks to get through to the ignorant Dr. Seems they don’t look at med info, which relates to amount needed due to physical size . I am not overweight.