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Anyone else have a Redundant/Tortuous Colon?
Digestive Health | Last Active: 6 days ago | Replies (1650)Comment receiving replies
I have had several episodes over appx. 2 year period. It starts with severe cramping across my entire lower abdomen. Gets increasingly worse until ultimately I break out in a sweat all over, not just my forehead, like a slick sweat over my entire body, and both arms go numb from shoulders to fingertips.
The first time it happened my hands started to draw up. Since then, my hands have not drawn up again. But the sweating and arms going numb happens. Sometimes accompanied by bowel movement, sometimes not. But when it occurs, there is a panicky, sick feeling that happens. It's like I'm sick, I'm hurting, I cant breathe but I can...I honestly don't know how to explain it because I don't know what I feel. It's crazy! I literally call out, loudly, "God please make it stop." It's all I can do. In my mind it lasts several minutes. Two nights ago, my husband said the hollering went on for about an hour.
It happens about every 6 months or so. Cardiologists suggest it's vasovagal. But I'm not convinced. I have a tortuous colon. GI doc has to use a pediatric scope to do my colonoscopies. There have been some pre-cancer fold removed a couple times.
I'm at wits end and no one can explain it to make me, nor give me information on how to prevent it. Vasovagal, in my research, does not explain it at all.
Any ideas???
Replies to "I have had several episodes over appx. 2 year period. It starts with severe cramping across..."
@phlebe I have had a tortious colon and struggled all my life..hospitialized 3 times.. and have had the same sick screaming ..it got so bad one time I started sweating..and nothing up or down..swaeted out all my fluids and my boyfriend found me on the floor unable to dress..talk.. I just said call an ambulance.. when they got here my blood pressure was 60 over 40 and I had sweated out all of my fluids so badly it took 20 min for him to get and IV started.. (no veins to be found) ..I used 2 bags of fluid on the 45 minute drive to the hospital.. keep me for a week.. called it colitis.. I try very hard not to let if get to that point.. I take trulance.. miralax (3 times a day if necessary ) and drink pear juice.. eating is very scary and dangerous..I also have been recently diagnosed with Chronis spontaneous hives.. I feel your pain!! you are not alone!! I will pray for you!!
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@phlebe What you describe is my life. I am female, 5’2” fairly healthy 74 and still have those vocal episodes in severe pain just like you - sweating, chills, stabbing cramps, and my worst part, a migraine with 12-18 hours of vomiting bile, then dry heaves, which won’t subside until the gut calms, then… maybe a BM or not. All this takes 12-18 hours from my life. My biggest disappointment over the years is I haven’t found a doctor who takes it seriously. Also, many people have never heard of a torturous or redundant colon. I hope they start talking about this.