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Lori, Volunteer Mentor avatar

My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: 20 hours ago | Replies (871)
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Profile picture for jrwilli1 @jrwilli1

My husband at his 3 year rebirth day visit the Doctor so wanted to say he felt he was “cured” but said he was afraid to say it. He couldn’t even say the word. But it still feels so good to have the second chance. So happy for you.

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Lori, Volunteer Mentor | @loribmt | Apr 30 6:46am

Good morning, @jrwilli1 I’m with your husband…ya know what? I still don’t use the ‘cure’ word and it’s been almost 7 years. Feels like I could jinx something if I do. So, the term we use is ‘durable remission’ . 🥰

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alive | @alive | May 2 3:47am

@jrwilli1 I think that as more years pass since my SCT, the more comfortable I become with the thought that I won’t relapse. I will be celebrating my 10th rebirth day in August, and I use the phrase “cancer free”.

My family history with cancer makes me feel like I am in an uneasy dance with cancer: both of my parents and one sister died from cancer. I was able to get away from one, but who knows if another one may be lurking somewhere in my future. I don’t dwell on this and live a full life today.

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