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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: 11 hours ago | Replies (5991)

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@teacup

Would like to know how I can continue to live with the extreme Pain attacks of my neuropathy, worst time is when I lay down, what meds do I need?

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Replies to "Would like to know how I can continue to live with the extreme Pain attacks of..."

@teacup - the first thing you need is a good neurologist. There's a mighty long list of medications and treatments for neuropathy, as well as various diagnoses. Let me know what you learn from the neurologist.

How do you know you have neuropathy? Have you tried any medications? I suffer with a lot of peripheral neuropathy pain, so I sympathize with how you feel. I've tried every medication for neuropathy pain that's available, and some that aren't usually used for pn, and I had a spinal cord stimulator implant in June. It helped a lot, but my feet hurt still, and I keep finding that other problems I have are probably neuropathy related. It's a tough disease. I hope you find some relief soon.

Jim

Hello @teacup - I would like to welcome you to Connect along with Jim (@jimhd) and others. The pain can be overwhelming at times and night times seems the worst for a lot of folks. I agree with Jim that if you haven't already met with a neurologist that would be a good place to start. Have you received a diagnosis for your neuropathy?

We are glad you found Connect. It's a good place to learn what other Connect members with similar health concerns are doing for treatments. Keep asking questions until you find an answer - you are your best advocate. Hoping you find some relief soon.

John

Diagnosed with PH in 2003 - by a neurologist. Have seen 4 of the professionals now...am' working with the best yet. However, pretty much the regiment right now is; Gabapentin. Along with PH I have been having bouts with restless leg syndrome. Painful and disruptive to sleep to say the very least. Broke my leg - point is with that is I was prescribed oxycodone, seems to take the pain down, but not out, but, hey I'll take a ayuthing that at least does that much....