@stage4lovolmetpc
It’s good to hear your numbers are getting down. You’ve only been a couple months so they should go more.
Yes, chemo is what many doctors would do with someone who has The number of Mets you have, But I am puzzled as to why they only put you on ADT. Normally, you should be on doublet therapy, which includes an ARPI either Zytiga, Erleada, Nubeqa or Xtandi. I would ask your doctor why you aren’t on doublet therapy. Just about every center of excellence would say that is what you need, Staying on just ADT can make you become castrate resistant while adding that ARPI can delay that time for quite a while. It also would get your PSA down further. It isn’t low enough right now,, hopefully it will become lower in the next month. I know that a PSA around where yours is at allowed my system to create a Metastasis on my spine which I had to get zapped with radiation.
You might talk to him about going on Nubeqa. It has no side effects for The majority of people I know on it. It works well with chemo, So being on it would prepare you for that.
I just wonder if you need to get a second opinion. The standard of care is for you to be on at least doublet therapy if not triplet therapy. That would get you the best chance of having long-term remission.
Some things to think about, Not telling you what you have to do, but just telling you what is normally done.
@jeffmarc
Jeff, thank you for taking the time to comment. I am on ADT and ARPI (Orgovyx and Zytiga), 2 months now and am pretty happy with the way the numbers are going....I am now researching Xgeva, which I am supposed to start May 29th. I have made an appointment with the dentist to talk with him about dental concerns and will start taking D3 and Calcium in anticipation of going on the Xgeva.
I am thinking of getting a second opinion, just to be sure I am on the right track.
Learning that I am considered "palliative care" was sobering, to say the least. I guess I knew that, but seeing it in writing drove the point home. Might take a couple days to get back to my foolishly optimistic self, lol but I will. Have a good day everyone, Im getting outside for a walk in the woods..........and thanks for the hugs and likes, I do appreciate the kind thoughts you send.