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Doctors skeptical of PMR diagnosis

Polymyalgia Rheumatica (PMR) | Last Active: 2 days ago | Replies (8)

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Profile picture for jabrown0407 @jabrown0407

I have had PMR Dx for 7 years. I have always had searing thigh pain - which is not a standard symptom. I recently was on some medicine that made the pain go away, not steroids. After doing AI research I now suspect LFCN (lateral femoral cutaneous nerve) pain because it is a searing (burning) leg pain, covering the surface of my thighs. Please research this to make sure you are not adding steroids when that is not the correct way to address this problem. BTW, I did not know about LFCN several years ago when I saw my neurologist and he missed it as did the neurologist who ran the nerve conduction test on me. I am returning to discuss it with my neurologist in early May. My pain is deeper into the tissue and not just on the surface of my skin. Some people have skin sensitivity with this problem.

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Replies to "I have had PMR Dx for 7 years. I have always had searing thigh pain -..."

@jabrown0407jabrown0407 wn0407

Thank you for giving me another option to check out. This is my first time experiencing PMR in upper leg - always been in knee area previously. But will certainly ask about your suggestion next time I meet with rheumatologist