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DiscussionI am 75 and have carcinoid tumors NET in lungs
Neuroendocrine Tumors (NETs) | Last Active: Jun 15 2:19pm | Replies (144)Comment receiving replies
Replies to "@azrosegold I was on a Mayo NETs support group call recently. Dr. Thor Halfdanarson from Mayo..."
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@tomrennie I’ve had these tumors show up on scans for the last 11 years and been misdiagnosed until a radiologist at Flagstaff Medical Center alerted my ER Dr of his suspicions. I know first hand that a good radiologist is key to a good diagnosis, and yes we’re only human so mistakes are inevitable. I love that Mayo is fantastic at quickly uploading your test results to the portal, unfortunately I had my erroneous results in my head for 2 weeks until I got clarification from my Dr. I had already gone back and compared it to my prior CT reports and was pretty worried that I had developed a 27mm tumor in 3 months! Occasionally you get information that you’re really not prepared to deal with, biopsy results, lab work etc and you need to grin and bear it until your next appointment.