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I am 75 and have carcinoid tumors NET in lungs
Neuroendocrine Tumors (NETs) | Last Active: Jun 15 2:19pm | Replies (144)Comment receiving replies
@tomrennie saw the Dr yesterday. Apparently the 27 mm nodule was a charting error by the radiologist. The pulmonologist looked through all the images and did not see anything even close to that size. He messaged radiologist and asked them to clarify. While that is a huge relief it doesn’t erase the last 2 weeks of worrying. If it truly was an error my tumors are stable and I don’t need a f/u scan for 6 months. Just another example of my love hate relationship with patient portals.
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@azrosegold I was on a Mayo NETs support group call recently. Dr. Thor Halfdanarson from Mayo was the guest speaker. He was asked what imaging technique is best to view NETs. He responded the one with the best technician. His comment really hit home with me. It also applies to the radiologist reading the images. Unfortunately, people aren't perfect. It is great that you brought this up to the pulmonologist and he took action. Having a great team catches individual human error. Why the love hate relationship with patient portals? I am curious?