I agree with John and especially since you feel that your PN is mild (maybe it is still early enough for some kind of help from neurologists) My own feeling is that there are so many causes, so many levels of progression, so many areas of the body often affected, that the disease isn't clearly defined. As such, I think the medical community has not come up with a definitive cause, cure or even diagnosis. I hope the doctors who deal with this nasty disease read the blogs sent in by us and are able to add to their field of knowledge as a result. We've tried everything from bars of soap between bed sheets to using cannabis - some things help but so far no miracle cure.

Thank you for your reply. This is a frightening condition. I am active and have been so active all my life, people tell me I may end up in a wheelchair like them. obviously people whom I have met who are in wheelchairs.

Delane - Well, the people telling you where you might end up lacks a positive spin, I think. So here's a different take on it - maybe soon medical science will accomplish another miracle and PN and its "similars" will be a thing of the past. In the meantime, we all may end up in a wheelchair at some point. At the risk of seeming "Pollyanna"ish, I am glad someone invented wheelchairs so when we find them necessary, we can go on enjoying our lives, eating good food, laughing with friends and hugging loved ones. You are so right - it is a frightening disease but be assured with as many of us as are affected, someone is trying to figure out how to fix it. I hope it's soon, though - I'm 81 and I'd like to see how much of all this input is making some kind of sense to those whose job it is to stop it.