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← Return to SHEEESSHHHH - oh well ... : (
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@surftohealth88
Very frustrating for you. I wonder that they won't consider darolutamide, even if its not approved for BCR recurrence. Doctors commonly prescribe drugs "off-label", if they want to .
Maybe the docs are employed by the hospital, and the hospital won't let them prescribe 'off label' (could be a liability issue there) or maybe they know insurance companies won't cover non-approved drugs, so they don't prescribe them. Guessing the ARPI's aren't generic yet ($$$)
Crossing my fingers that your husband's PSA plateaus, or better yet, goes back down.
Replies to "@surftohealth88 Very frustrating for you. I wonder that they won't consider darolutamide, even if its not..."
@klein505
Markers stay forever, unfortunately. Supposedly they do not do any harm since they are made of gold. I will have to believe that. 😬
PS: I wrote reply to your other post too, but it is "under review" - I probably went overboard with smilies , as usual lol. It should be posted here very soon ...
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@klein505
Thanks Mrs.K for your well wishing and for giving me support and hope. 💗
Who knows what is behind ARPI not being available, but I am sure that $$$ and insurance play a big role, as always. Even Orgovyx was hard to get until very recently ! I just thank God that my husband is on Medicare since many of those treatments would be of limit for us, probably even Orgovyx.
Oh how wonderful it would be that wheel of fortune turns finally in our favor 🌈✨ !!! *sigh After 35 years of adversity one would think that it is high time for that to happen ... 🤷♀️ Some days I feel like I am stuck in some Greek tragedy play and just can not find the way out of labyrinth that has multitude of painful challenges waiting behind every corner ...