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Living with Neuropathy - Welcome to the group
Neuropathy | Last Active: 6 days ago | Replies (5972)Comment receiving replies
For John Bishop @johnbishop and others with dry eyes from PN or other forms of neuropathy, please take care of your eyes. On Thursday, it was discovered by my opthomologist that I am now losing cells in my right eye. So we are attacking that issue with a new medication, Xiidra. It helps retain moisture better than Restasis. It too should be kept in the refrigerator. I will also have to increase the wet hot compresses. The battle has begun in earnest. And I will do everything I can to win.
Replies to "For John Bishop @johnbishop and others with dry eyes from PN or other forms of neuropathy,..."
Hi @artscaping,
I just thought I'd pop in and post this information on Xiidra (Lifitegrast): http://www.mayoclinic.org/drugs-supplements/lifitegrast-ophthalmic-route/description/drg-20312356
@kyjeanne and @melperez1223 have also discussed Xiidra, and I wonder if they have any insights?
I've not had negative results with Xiidra, but they do leave a bad taste in your mouth. They work well on moisturizing your eyes, but are expensive.
The short time (about 2 months) I used Xiidra, it worked great for my dry eyes, but I had to discontinue since insurance wouldn't cover it.
Thanks. I did read up on it a bit. I am just doing a one month trial to see if it helps control the cell loss. Than I will have to battle the insurance company if it does work.
Thank you. I was just diagnosed with neuropathy recently- I have burning pain in both of my legs - a few other things too - not sure if they are related though. I have another appointment with another neurosurgeon on August 31st. I didn't realize their was cell loss with neuropathy.. I have horrible pain when I go to bed at night - and they found a very small sheath tumor on my nerve root - L5 so I'm wondering. This whole neuropathy is confusing because everyone is so different. I have never been on chemo or do I have diabetes. I do have osteoporosis and lower back arthritis & herniated disk. I also have Polycystic Liver & Kidney disease - I had 3/4 of my liver removed about 16 years ago and a kidney transplant actually almost 11 years ago. I have aches and pains sometimes arms and shoulders but just thought that I'm getting older so par for the course..lol - I have many questions.
Thank you so much for sharing!
pk
According to my ophthamologist, these tiny nerves run all over our eyes. They are supposed to have enough density to hydrate the surface cells on our eyes. When they don't, the cells cannot survive. I have been fighting this for years as my neuropathy has become more severe. The burning pain is pretty constant at this point. Everyone experiences neuropathy differently. As my pain release massage therapist says, "fascia and tiny fibers have unique voices in everyone."
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Thanks Chris, sorry to hear of more eye trouble for you. I'm glad to hear there is something that will help. I do get my eyes checked yearly at Mayo but you never know. Keep doing what you're doing and stay on top of it.