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Post-COVID Recovery & COVID-19 | Last Active: May 6 9:02am | Replies (18)

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Profile picture for pattig09 @pattig09

@cometboy Have your doctors discussed "Dysautonomia"? It's refers to a group of disorders affecting the autonomic nervous system which controls automatic body functions like heart rate and blood pressure. Germany has taken the lead on 2 blood tests when individual Long Covid patients reported symptoms, those results were placed on a graph. Numbers in the attached graph indicate individual participants assigned to a given syndrome and/or syndrome intersections. Take a look at the symptoms overlap for ME/CSF, POTS, MCAS, and SFN (#65) as those individuals had ALL the symptoms for 4 diseases; ME/CSF, POTS, MCAS and SFN. If you have ALL symptoms for the 4 diseases and were diagnosed with just one of the symptom groups you reported without focusing on the other symptoms you have, treatments may need adjusting. Germany testing: altered receptor antibodies, most notably angiotensin II type 1; and, alpha-2B adrenergic receptor antibodies to determine those who are suffering from PACVS. Graphing showed them what to treat.

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Replies to "@cometboy Have your doctors discussed "Dysautonomia"? It's refers to a group of disorders affecting the autonomic..."

@pattig09

Since I am an engineer graphs like this grab my attention (although not automatically my respect). Do you have the name/paper or any other information about this graph? I'd be curious as to what the numbers refer to.

Cheers.

Update: I did find the original paper. It was written about negative reactions to the covid vaccination. I am aware that some people have this issue but I am not one of them. I had two covid vaccinations before I actually caught the virus. The problem started after this.

Cheers.

@pattig09

Thank you for posting this. It’s maddening to me how it can take years to get a diagnosis of dysautonomia. Fortunately I was persistent and am in recovery. This health issue can be debilitating.