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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Apr 25 10:43pm | Replies (5972)

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@parus

Whilst I am in neuropathy territory does anyone know of any meds other than Lyrica, Savella or Neurontin (Gabapentin) for this dreadful affliction??? I am not diabetic. I read about the Ben Gay and know I have total bod neuropathy and cannot tolerate the BG odor. I have also tried the essential oil lavender and some others w/o any relief.

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Replies to "Whilst I am in neuropathy territory does anyone know of any meds other than Lyrica, Savella..."

Medical Marijuana works VERY well for my neuropathy.

Mine too.  And CBD oils, ointments, and capsules are not hallucinogenic.  I am so glad I was able to get away from the opioid pills.

I've heard a lot of different folks have been helped by a compounding pharmacist that can mix the CBD and THC from cannabis so that you get pain relief without the loopy feeling that some fear...but I'm not sure it's readily available everywhere. Here in Minnesota you have to be approved by your pain management doctor and get on the state's list - more info here:

http://www.health.state.mn.us/topics/cannabis/

I think one of the big benefits is it is a topical and you get to rub it in where it hurts and get pain relief without what has been described as "foggy brain". In Minnesota there are only two compounding pharmacist - the Mayo Clinic Rochester and the Lake Elmo Pharmacy - http://www.lakeelmopharmacy.com/pain-management-2.html.

It is most definitely a nasty, unforgiving disease. Wishing for a pain free evening for all my neuropathy friends. Psst...If you don't like Ben Gay, try Life-flo Magnesium Lotion - has a great smell and it is one of the best moisturizing lotions I've used on my feet. Nope, won't help with the pain or the numbness!

John

Hi@medic7054 where do you live to be able to get it?

@parus

I have tried so many drugs, I can't remember them all. Right now I'm taking Cymbalta and Morphine sulfate contin, and I use Lidocaine cream to numb the pain, mainly in my feet. I think I took Nortriptyline, Tegretol, Oxycodone, Capzasin, and others. Acupuncture was suggested but I can't afford it. Now, since I had a spinal cord stimulator implant, the pain in my feet is around 80% better. Generally, they don't hurt in the morning, but gradually hurt more as the day progresses.

Jim