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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Apr 25 10:43pm | Replies (5972)

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@yoda

I'm Hugh, new to this group, joining because they tell me I have peripheral neuropathy. Having been to Mayo for the 2-day Pain Rehab event, I am impressed by Mayo and interested in this group. I hope to be useful, and to be informed and advised.

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Replies to "I'm Hugh, new to this group, joining because they tell me I have peripheral neuropathy. Having..."

Welcome Hugh (@yoda),
Do you know what that cause of your peripheral neuropathy is? What was the most important thing that you learned during the 2-day Pain Rehad event that you'd like to share with the group?

Hello Hugh (@yoda), Welcome to Mayo Connect, we are happy you joined us. Can you share a little bit about your diagnosis or do you have any questions you are trying to get answered?

I found this group in March of last year when I was searching for a neuropathy support group. It is a great place to ask questions of others that share health issues similar to yours.

John

Actually, I don’t know what caused the neuropathy—I’m going through blood tests to help determine that!
So far, the leading candidate may be too much Vit B6,  of all things. I’ve no idea of how a B Vitamin can cause nerve pain, but I’m told it can. 
For the Pain Rehab 2-day, several things really helped. One was the information about pain and self management, gently & respectfully stated. Another was meeting folks who had far worse pain than I, but were gentle and gracious with others—positive role models. Also helpful were the negative role models, folks who took out their pain on others around them…

Not a lot to share, John, ‘cause I don’t know much. A neurologist examined me and said I had peripheral neuropathy, and sent me for blood tests. She said it was most likely diabetic, but I don’t have diabetes.  She said too much B6 could do it, and it turns out i do have too much B6—so I’ve dropped the multi-vitamin supplement i had been taking.
I had been convinced my leg pain was a result of spinal stenosis.  I guess I’ll find out!

Hi @yoda, too much b6 is definitely a bad thing. There is quite a bit of information out there on b6 toxicity:
http://www.easy-immune-health.com/vitamin-b6-toxicity.html

John

Useful info—thank you, John!