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carlsbadguy avatar

Newly diagnosed

Prostate Cancer | Last Active: May 15 11:05am | Replies (28)

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Profile picture for diverjer @diverjer

You might also ask for a decipher test, I found that interesting. Didn't like results, but good to know. Also, I had some genetic testing. One thing I might mention and pretty sure I am right, if you have radiation treatment first, they most likely would not do surgery at a later date. From what I understand, very few places do surgery after radiation.
When you get the PSMA PET I found it interesting to get the SUV reference scores for parotid glands, liver and blood. Then compare that to your prostate score. That helped me understand the prostate score better. I had to really ask a lot before they would give me these reference organ scores. Uptake > blood but less than liver is a low score 1. Greater than liver but less than parotid gland intermediate score 2. Uptake greater than parotid is high score 3.
Anyway, I wanted this information and found it useful, but sure had to ask a lot before they gave it to me. Others on here know much more than me, so they might give you much better advise.

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Replies to "You might also ask for a decipher test, I found that interesting. Didn't like results, but..."

@diverjer
As @wheel1 mentioned, Surgery is possible after radiation.

People who have radiation as their primary treatment have been told by doctors that surgery isn’t really an option if there’s a reoccurrence. Other options are not really mentioned..

This study shows that both salvage focal therapy (HIFU and cryotherapy) and salvage surgery were equally effective at extending the life of a patient that started off with radiation.

Those that had focal therapy had fewer perioperative complications.
https://jamanetwork.com/journals/jamaoncology/article-abstract/2844900
One other thing to consider is that it is likely that the BCR is due to a metastasis somewhere outside the prostate, So treating the prostate isn’t always necessary after a reoccurrence.