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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)
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@georgiegirl

The concern I have is that evidently my neuropathy source is not known, according to neurological tests I have been given over the last 26 years. It is not peripheral but eminates from my lower back. I have constant electric zinging up and down my legs and feet with intermittent lightning bolt type jolts when I walk. At night the zinging is most prominent so it's sometimes difficult to go to sleep. I have used gabapentin over the years but it really does not help. I tried Lyrica but it made me loopy and off balance. Surgery has been suggested with the caveat that there is no guarantee of any real relief. I feel like I will have to live with it but am just looking to see if anyone has come up with ideas of ways they use to calm the electricity down. I would appreciate any thoughts. Thank you.

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Replies to "The concern I have is that evidently my neuropathy source is not known, according to neurological..."
zorrospouse | @zorrospouse | Jul 26, 2019

I also was on Gabapentin but because of fall issues have switched me to cymbalta. Has any one had good luck with that?

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dyawch1 | @dyawch1 | May 31, 2023

Hello, In certainly feel for you . I have just joined this group when I read this as I wanted to suggest something that gives me relief, even though I just might be creating other problems. I have this unbelievable itch on the bottom of my feet and the only wayI can tolerate the attacks I get is to immerse the foot into ice water…sometimes for a couple of hours.
As you said, the gabapentin and Lyrica do not help in the small dosage I can manage without getting exceptionally “loopy” as you call it.
I hesitated joining this group because I do not suffer as much by any means as most of the people posting here. It’s really sad to see.
In fact all I know is that I have this “unscatchable” itch in varying degrees of severity occurring randomly though not at all as often as the other sufferers here . My Doctor has tagged it as Neuropathic, in that nothing resolves it other than time.
I was prescribed Lyrica, then Gabapentin as a more forgiving drug, and have have neurologists declare that my nerves are working just fine.
So I continue to record them for the last 5 years, carry freezer blocks with me when I can and hate every moment when I have an occurrence, with my feet in that freezing ice water for the ones above a 6 out of 10 on the discomfort scale.
So when things get really bad, try the ice, for it will give you relief until the the “attack” subsides.
I just wish I could take a pill or something that will act in say 5 mins, as 1- 2 hours takes a lot of time away from any day and is exhausting to live through.
Cheers

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