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Living with Neuropathy - Welcome to the group
Neuropathy | Last Active: Jan 8 7:56am | Replies (6210)Comment receiving replies
Glad to see this group. I have idiopathic sensorimotor axonal polyneuropathy, which means, in my case, that both my legs are weak and sometimes my feet hurt, but there is no known cause of the neuropathy and no known cure.
Sometimes I experience the most foot pain lying in bed. I have been offered gabapentin, but in my experience that drug was not helpful.
I also understand that alcohol may exacerbate neuropathy, so I stoped all alcohol intake; however, I haven't seen any improvement yet.
I had a laminectomy at L4-L5. That had the possibility of easing the neuropathy, but it didn't.
What's next? Don't know.
Kevin
Replies to "Glad to see this group. I have idiopathic sensorimotor axonal polyneuropathy, which means, in my case,..."
Hi Kevin, I wasn't exactly sure what the diagnosis was not able to find much specific information on the Mayo Clinic website. I did a search using Google Scholar (https://scholar.google.com) with your specific diagnosis and it came up with a lot of information. Not sure if it's helpful but you may want to look through the links and see if any of the titles jump out at you:
https://scholar.google.com/scholar?hl=en&q=+idiopathic+sensorimotor+axonal+polyneuropathy+treatment&btnG=&as_sdt=1%2C24&as_sdtp=
Hope this helps...
John
You can also read other members' experience with laminectomy and ask questions here on Connect:
- Laminectomy and L4-L5-S1 fusion https://connect.mayoclinic.org/discussion/laminectomy-and-l4-l5-s1-fusion/
Take Nerve conduction test.
Hi Kevin. I'm not good with all the names but your symptoms sound pretty much like me and what you're doing. Yeah I have no answers either I even had back surgery once for it so they could help me I didn't I don't think there is anything.
I take Gabapentin daily. Three 300 mg. at 8 am 12, 4 and 8 pm. It's been helping me for several years about 50-60% pain reduction. I am non diabetic. John
I’m taking gabapentin and Dulextione and Quetiapine. So far I can sleep but I walk really funny.
I, also, have GERD and optic nerve damage.
Connect
Have U consulted your neurologist?
I still use gabapentin, 300 m g, AM and PM. Others Use Lyrica.