Connect
← Return to Anyone have/had BD-IPMN (branch duct intraductal papillary mucinous)?
Discussion
Anyone have/had BD-IPMN (branch duct intraductal papillary mucinous)?
Pancreatic Cancer | Last Active: Apr 29 9:20am | Replies (55)Comment receiving replies
Hello everyone, I know this is a relatively old thread but I’m currently awaiting further tests for a 1cm BD IPMN with worrisome features and symptoms. So far a CT scan and MRI have picked up the lesion and flagged it as having thickened walls and enhanced on scan images. I also got the results of a CA 19.9 blood test today - it was up in the 30’s but still just within the “normal” threshold. Next step is a PET scan, EUS and further blood work. I haven’t slept for about a week with the anxiety of the unknown. I’m also very worried about allowing a biopsy during the upcoming EUS as I’ve heard horror stories about lesions then going on to become malignant and/or metastasise. Anyone have any words of wisdom or experiences and advice? Thanks, Erin
Replies to "Hello everyone, I know this is a relatively old thread but I’m currently awaiting further tests..."
Connect
@erinmck Hi and welcome to Mayo Connect. First off, don't get too far ahead of yourself. Diagnosis and developing a treatment plan is a process. You have to work your way through it. Second, I understand the anxiety. Where are you reading about the horror stories on an EUS? I have had a few without problems. Make sure that you are getting your information from credible sources. There is a lot of misinformation on the internet and AI isn't always accurate. Third, take a deep breath. Folks on Mayo Connect are here to learn and share together. We are a community. I have learned so much from others. How are you feeling overall? What three things are you most concerned about?