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Anyone else have multiple autoimmune diseases?

Autoimmune Diseases | Last Active: 3 days ago | Replies (147)

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Profile picture for donak @donak

Yes. started in my 50s with Hashimotos, Later retirement, then 2023 GCA, 2024 PMR that had probably been there for a while. On the journey with flares from prednisone tapers and Actemra infusions to counter this, I developed bullous pemphigoid and had to stop the infusions. 70 now, still tapering efforts continue, and more recently developed mild adrenal insufficiency after repeated restarts of tapers. Treatment and constant adjustment of BP meds with tapers, and bone strength checks. It's hard after time to tell disease from medication side effects, from drug induced conditions. What a rat chasing its tail! Now, doc suspects Sjogrens and/or CREST. I'm so tired.

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Replies to "Yes. started in my 50s with Hashimotos, Later retirement, then 2023 GCA, 2024 PMR that had..."

@donak a lot understand the frustrations. In 70 years is there even 1 of life’s giant hurdles that you didn’t make it over?
Keep pushing forward you have support here if you need it.

Laura

@donak you sound like my daughter. She is also tired. Tired of being so sick tired of all the pain , tired of all the infections that come from the drugs that are supposed to help me . as her mother
I can say you don’t get to give up. There are new treatments in the horizon I have watched her disease up close and it’s not easy. 5 different diagnosis
You all need to keep up the fight
Do you have family support ? It makes- a difference Stay strong g