@grammato3 I was recently rejected by Mayo Neurology too, so I obtained a referral from a sleep apnea dentist (who use to be an ER and ICU nurse) who felt my case was "very neurological," even being the first clinician to witness my inovluntary movements, and sent it to Barrow Neurology, (the initial doctor she recommended also rejected my case) instead. At this point I'm feeling discouraged, because Ive repeatedly been told variations of "we don't treat insomnia," or had my symptoms interpreted through a psychiatric lens.
When I first presented to the Mayo ER years ago, I was discharged with a label of sub acute onset "atypical psychosis,"and a CPR referral, without any timely neurological evaluation during the actual "episode,". Since then, the neurolgoical symptoms have never been assessed during an active phase. Even ironically orderings a "sleep deprived EEG" months after I started a poly pharmacy stack to sleep. The group the replied posted to is not medication neutral or medication positive, and while I understand their approach, I don't think CBT-i, ACT, or sleep hygiene based treatments will address symptoms that appear to be neurologically driven (thinking of orexin hypocretin agonist, or NMDA receptor antagonist) rather than psychologically. I still don;t have a clear explanation for the rejection from Mayo, whether it was due to capacity, or my descriptions don't match their intake criteria, or because my case looks incorrectly "fully evaluated,". I’m trying to find a path forward, but it’s been difficult to know where to turn next. I almost certainly expect Barrow to reject me as well. Its like no one really wants to find out whats wrong, or that I am unworthy of further investigation.