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Neuroendocrine Tumor - no treatment plan method
Neuroendocrine Tumors (NETs) | Last Active: May 5 8:09am | Replies (164)Comment receiving replies
@hopeful33250 they diagnosed a neuro tumour. They went in and couldn’t find it. 7 months after CT Scan said lesion had healed. This time looking again Path report. Biopsy has a 1.0mm neuroendocrine lesion, with monotonous small-intermediate sized cells without mitoses or necrosis. The distinction between neuro. Hyperplasia and neuurodictrine tumour (net) is uncertain when less than 5mm . endoscopic correlation is required..
This specialist I am seeing is qualified in this Net stuff. I’m arming myself as much as I can . So any information or thoughts would be appreciated. Thanks from Australia
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@tigerseye
As I'm not a medical professional, I can't interpret the reports. It would be interesting to know what other tests you have had related to a NETs diagnosis. Have you had the 24-hour urine test or any blood tests related to your serotonin levels?
Here is a link from the Mayo Clinic website about the diagnosis of NETs,
https://www.mayoclinic.org/diseases-conditions/neuroendocrine-tumors/diagnosis-treatment/drc-20465865
Here is a link from the Neuroendocrine Tumor Research Foundation with a lot of good information about NETs.
https://netrf.org/for-patients/
I'd encourage you to read the information so that you feel better educated as you visit the specialist. Having some background understanding of NETs is important. This is a rare cancer, and it is important for us to advocate for the best treatment possible.
Will you continue to post with your questions, concerns as well as updates?