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I broke out in a flat purple rash all over my body, but not my face thankfully. Then it went into blisters that felt like bees stinging me all over. The trunk of my body and even the palms of my hands had blisters. 60 mg of Prednisone stopped it, but as I taper off of Prednisone and add Duplexent injections, I am crippled. Horrible leg pain in muscles and joints. Have been in the hospital 3 times for this pain. This is over a 6 month period. I am crippled and have a walker and have been unable to go to work. The trigger that started Perigoid in my body was an injection of Nemluvio from my Dermatologist for a minor case of eczema!
Replies to "I broke out in a flat purple rash all over my body, but not my face..."
@mnblue50
Did you notice the leg pain and joint pain after starting dupixent? Just wondering if it’s a side effect of the medicine?
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@mnblue50
I had Pemphigus Foliaceus yrs ago. I was on high dose 100mg- 40 mg of Prednisone for 5 yrs, then they added experimental chemo for 5.5 yrs. I was talking to my allergist/ immunologist and my primary care that if it would ever come back, they say they are biologic meds to help with pemphigus (auto immune issues) that is safer than long-term steroid use or chemo. Also, it never hurts to get a 2nd opinion. Also, do your own research to educate yourself. Years ago, I found a Pemphigus website that talks about the different forms of treatments.