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DiscussionConsidering Tulsa Pro or Proton radiation (full gland)
Prostate Cancer | Last Active: Aug 1 8:53pm | Replies (115)Comment receiving replies
Replies to "@bjroc Have you consulted with the University of Florida Proton Therapy Institute? All they do is..."
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My trouble is Dr Scionti took forever to tell me he would not re-do Tulsa and that took a whole month out, then I have been meeting places for a whole month, I am pressed by the kind of informal you get 3 months rule.... So maybe this week I will have to make a decision, so I can't do anything new but I do have one last appointment Mayo Rochester. I will see about proton again, as I tried in 2023 with them. That remains to be seen, they could not get me a slot in 2023 but we will see.
@daveinflorida No I tried a place called SFPTI in south Fl which was sort of ok, but they were going to get back to me with some things I see they are real slow, I don't think they can handle many patients and are full sort of but it is about only place that was a maybe on proton. So I probably should have tried the place you mention instead, as you know you need a place that has proton, wants to treat you with proton, and has availability which is what Mayo never had for me.
@jaygk I have one last appt with Mayo this week and it is decide time unfortunately or I would try that as it sounds good. If Dr Scionti hadn't taken a whole month to let me know I think I could have tried places like that. I have scrambled like crazy over last month to get in as many places as possible, just been kind of crazy, glad I am retired, no way I could have seen and gone all these places and worked.
Here is a MRI slice pre Tulsa (left) and post Tulsa (right) on attached, if it comes through. You can see they were ablating using Tulsa up around 1 PM, but around 6 or 7 PM on post photo (photo on right) you see tissue bundled toward capsule around 6 or 7 PM. So Tulsa pushes tissue opposite direction and it bundles up and doesn't always ablate right in some cases anyway where lots of tissue needs to get ablated. I think that is what happened to me, a bug sort of in cases where lots of tissue needs ablating anyway.