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catherine71655 avatar

Any experiences with Kevzara (sarilumab)?

Polymyalgia Rheumatica (PMR) | Last Active: May 1 3:40pm | Replies (114)

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Profile picture for tweetypie13 @tweetypie13

@jabrown0407
Ok, so let me seee…..
8 wks past last injection of 200mg at a 3 week interval……means I have nothing in my system?
Are we suggesting that because my CRP is elevated, and no Kevzara in my system…I need to restart as a precaution?
Restart at 3 wk intervals which I was in for 4 months before stopping?

Reminder, fully active at 80 yo, and no inflammation symptoms except a chronic knee. Still hike, bike, walk when I golf, comfortably handle a 4.5 mile walk at 19 min mile with elevation chg.
Thxxxxx everyone

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Replies to "@jabrown0407 Ok, so let me seee….. 8 wks past last injection of 200mg at a 3..."

@tweetypie13 No, I am suggesting five half life's equals whatever. I don't know what that calculates out to be. I am not willing to support your 8 weeks data. You maybe accurate, I simply can not commit. I am not medically trained and I am not an authority.

@tweetypie13
Love the attitude!
If it ain’t broke, don’t fix it.
Like you, I’d ride it out.
Speaking for myself, if I got/get that far then I’ll take nothing and see how it goes. Maybe a Tylenol, haha and go from there.

I appreciate and am grateful for all of the knowledge shared thus far. I’m hoping more people will add their experience with terminating Kevzara. So many of us are looking for answers to guide us through.

Like I said, you are an inspiration for me and I want your experience to be successful and forever!!!