In my case, going to Mayo/Rochester for a full workup and evaluation was definitely worth it. My symptoms first appeared almost 40 years ago (around 1987), but it wasn't until the early 2000s that my PCP referred me to a local neurologist, who in turned referred me to Johns Hopkins, I spent about 15 years going to Hopkins and another teaching school, with too many MRIs to count, plus many NCT and EMGs, and two nerve biopsies. The best they could do was to call it ideopathic. Finally, in 2019 I went to Mayo for a four-day workup. Their tentative diagnosis was CIDP, and I was also told that if treatment didn't work, I'd be in a wheelchair in five years. After I responded to IVIG and displayed moderate improvement, they were 99% certain of the diagnosis. I'm now 83, and have continued to stabilize, with very gradual improvement and reduced falls. I walk with one or two assistive devices -- but I'm still on my feet. Every case is different, but in my case it was certainly worth the trip to Mayo.