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← Return to SIBO…did it ever go away?
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@ggr I wish I could be tested (and treated for if I have it) for Mast Cell Activation. The nearest medical practice that knows anything about it is a 4-hour drive away. And I don't drive anymore anyway. So no luck there. I wish we could get someone here who knew about it but our trend here is losing medical professionals, not getting more. And even if we do ever get someone like that here, I'll probably be dead by that time anyway.
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@h8bigbiz I am in the mind set that I just don't care anymore. It's become a bad joke since the list of my issues seems to grow now I just laugh. These are just on the digestive side and there are some others things so - now I laugh at it all.
I have never added anything by worrying over it. Simply manage is really all there is.
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@h8bigbiz My wife and I both have it and alpha gal. The two seem to go together. They don't do much except avoid the triggers, which we are aware of. The medical community is slowly becoming aware of it. To our surprise, they were totally ignorant of alpha gal down at MDA, although they treat with drugs ending in "mab" all the time...*
A lady dying of a monoclonal antibody drug who had alpha gal was how the disorder was discovered...