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@bjroc
Sorry about your experience. Having to go through this twice is tough. Yes Brian J has been a great help to me. We are fortunate to live near the University of Cincinnati with the Varian proton machine. Perhaps try them if you have not already.

Curious what your # of and Gleason biopsy scores and if you had decipher testing. ?

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Replies to "@bjroc Sorry about your experience. Having to go through this twice is tough. Yes Brian J..."

@jaygk

Thanks,. At the little hospital near Dr Scionti in FL they got two cores with 4+3 in two areas. Where I live the university with a full pathology training program downgraded it to 3+4. I guess Cincinnati and Cleveland are not too far from Western NY but getting kind of tired. Yesterday I ran down to U. Penn Lancaster with the latest Varian Probeam 360 proton machine, and it was like I ran into a brick wall, they were trying to get me into CyberKnife and an old one too and basically said proton and prostate is just not needed, I passed. Locally I am offered a 5 session Varian ETHOS 36.25 Gy photon type but they want 6 month ADT due to two areas, but I guess it is a newer photon. Not sure I can handle ADT without a thyroid, so on full thyroid hormone replacement and the anti-T interferes with thyroid replacement so it will be super hard. Dr Scionti was supposed to have taken 75% of my prostate with Tulsa, but he must have run into trouble, maybe he got 40% or BPH brought some back who knows, but anyway it got me several years I guess. They really don't like two differing areas, right and left, so this is trouble for you too.