Connect
← Return to Considering Tulsa Pro or Proton radiation (full gland)
Discussion
Considering Tulsa Pro or Proton radiation (full gland)
Prostate Cancer | Last Active: 4 hours ago | Replies (42)Comment receiving replies
@oldgreenpaint Yes, proton radiation can hit the bladder - if they do the (very complex) calculation wrong. Proton’s Bragg-Peak characteristics come into play with these treatments. This can be further minimized using a rectal spaced, but the Bragg-Peak is an inherent characteristic of protons that photons (X-rays) do not have.
Yes, radiation side-effects have a way of sometimes happening months or even years after treatment. Again, if they do it wrong and hit otherwise healthy nearby tissues and organs with radiation, there can be those late side-effects. But, what radiation doesn’t hit, it doesn’t damage.
I’m 5 years post-proton radiation treatments (28 sessions) and so far, nothing has gotten any worse than I had going into treatments.
Replies to "@oldgreenpaint Yes, proton radiation can hit the bladder - if they do the (very complex) calculation..."
I wish brainjarvis was the rad onc I have been talking to. I can't convince any that proton and prostate is a worthwhile combo. They all say something like the new x-ray/photon tech is just as good, or there is no proof proton does anything better in any way, and this is places that have the proton machines so they should care. I don't know how you got in, but I am batting zero on proton, and I am talking places with proton machines. I am tulsa pro recurrence, recurrence still in gland, turned down for repeat since suddenly Dr Scionti thinks sound waves will bounce all over from scar tissue, where-as before he said he could do it as often as needed. Anyway, I don't think rad onc are taught anything about proton, outside maybe it is used in special brain tumors or something. Otherwise they think it worthless just about, and I am doing everything I can to connect to places with proton, just batting zero is all I can say.
Connect
@brianjarvis
Brian. I have an appointment with Dr Struve at UC in 2 weeks to discuss the proton therapy. I read were UC is a leader in proton therapy and has one of the largest grants in the country.
To summarize your 28 day procedure was mostly uneventful?
Were you put in the gantry?
Was the prep each time of full bladder and empty rectum difficult to repeat each day?
Did have to wear a catheter for some time after?
And at 5 years your ED and urinary system is at baseline as before the procedure?
My decipher testing on my 3+5=8 should be complete in 2 weeks.
I am thinking of sending the samples out for a come opinion binder Epstein…although I know if have 2 cores of 3+4 and 8 of 3+3 so I am bilateral.
Again….
Thanks for all the advice.