← Return to Worth visiting Mayo Clinic for evaluation of idiopathic neuropathy?

Discussion
Comment receiving replies
Profile picture for John, Volunteer Mentor @johnbishop

Hello @johnjp, I would like to add my welcome along with @hookedongolf2004, @patriciaschulz1950 and others. I idiopathic small fiber peripheral neuropathy and always wondered what the cause is. For me I think mine is possible related to the metabolic syndrome since I fit in the traits and have been labelled by all of my PCPs over the years as being pre-diabetic and not knowing what that really means health wise.

I too was told I need to go on statins but declined and decided to try and lower my cholesterol numbers with some lifestyle changes - eating healthier, exercising more, losing weight and cutting back on all of the sugar I was taking in. I only did this because I learned that statins indeed have a connection with neuropathy and I was already dealing with neuropathy and didn't want it to get worse. There are lots of research papers on the connection: https://scholar.google.com/scholar.

There are many different causes of neuropathy which I'm guessing is why it is so hard to pin down a cause for many of us. Neuropathy Commons has a good list if you want to learn more about the different causes - https://neuropathycommons.org/neuropathy/causes-neuropathy.

I shared my neuropathy journey in another discussion here - https://connect.mayoclinic.org/comment/310341/. Probably the best thing you can do is to continue learning as much as you can about the condition and the different treatments available that may provide some relief.

Jump to this post


Replies to "Hello @johnjp, I would like to add my welcome along with @hookedongolf2004, @patriciaschulz1950 and others. I..."

@johnbishop Thanks John. I'm new to this message board, but I see you are a generous contributor. I appreciate your thoughts and your giving back to the community.

I'll check out the links you had provided. I have pursued a bunch of possible causes. Had you seen the pneumonic "dang therapist"? There are others, but in this case, each letter starts a word which is a possible cause: D= diabetes, A = Alcohol, N= nutritional, G = Guillain Barre, etc...

I do not accept this should be so hard for science today. If we wanted to solve this, we could. That's my story and I'm sticking to it!

Thoughts and prayers go out to us all. I'm so sorry you are having to endure this.
Good day to all,
JP