← Return to Anyone else have a Redundant/Tortuous Colon?

Discussion
onaquest avatar

Anyone else have a Redundant/Tortuous Colon?

Digestive Health | Last Active: 17 hours ago | Replies (1635)

Comment receiving replies
Profile picture for shirls1953 @shirls1953

Hi
I have your condition as well as colonic inertia. My bowel has stopped working. I recently had a colonoscopy which has to be abandoned due to the paediactric scope could not get through. I had a Scan using a scope and gas to widen the bowel and take photos. So I have got to the stage where all conservative options have been tried and failed. My colon is stringy and has large blockage. I have just had this scope done so waiting to see WHEN I will be having surgery. I will be having an end ileostomy and will have a stoma and bag. I am looking forward to the completion of this surgery so I can finally have some quality of life. At present I have to be careful what I eat so I dont cause large stools. The only way I can have a bowel motion is by using a bowel prep picasolax once a week. These conditions absolutely drain you. I wish you well. I am in New Zealand.

Jump to this post


Replies to "Hi I have your condition as well as colonic inertia. My bowel has stopped working. I..."

@shirls1953 I am so sorry to hear how bad it has gotten. I am still in the "try anything phase" with doctors to see what works. I did just find out through a endoscopy and 24 PH manometry that I have a Hill Grade lV esophageal flap meaning it is the most severe and does not close, so all my food and stomach acid moves to my esophagus, causing inflammation in my lungs from microaspirations and inflammatory stomach and esophageal lining. Biopsied and it is not cancerous yet, thankfully. I have very low motility so we are trying larger doses of Amitiza, but I have not had great success with this.

I pray your surgery brings you relief and new blessings to your life pain free.