Connect
← Return to Lying about pain, but not how you’d think
Discussion
Lying about pain, but not how you’d think
Chronic Pain | Last Active: Apr 28 1:41pm | Replies (5)Comment receiving replies
@anniesezu812 sorry to hear that! I did actually manage to get surgery for MALS with Dr. Shouhed (though it was ridiculously expensive). The surgery did succeed, and that pain is entirely gone, which feels like a miracle, but I still have ankylosing spondylitis, chronic migraine, joint pain due to hypermobility, and full-body pain when I'm in a bad crash from ME/CFS.
May I ask, how was MALS ruled out for you? The idea that it's caused by celiac artery compression is a myth--it's actually caused by compression of the celiac plexus, so if it was ruled out because there wasn't radiographic evidence of arterial compression you may still have it. I would recommend a consult with Dr. Shouhed, it should be free with insurance. The surgery really did massively improve my quality of life, more than any other treatment I've had.
Replies to "@anniesezu812 sorry to hear that! I did actually manage to get surgery for MALS with Dr...."
Connect
@olivepchaps Thank you, thats more info. Than i've had from the Drs. No one really seems to have a handle on CP pain, nor did they take me seriously whdn I mentioned Mals. I was just told ' oh if you have it, we'd have seen it '...bjt I did read Radiologist need to specifically look for it. Regardless I believe the CP is responsible for my terrible spine issues. I have several bulging thoraic discs directly correlating to location of CP pain and now nerves in the lumbar are affected and I have herniated discs there...pain is so terrible.
I'll check that Dr out. Thanks again, sorry for slow reply...not been well.