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I am 75 and have carcinoid tumors NET in lungs
Neuroendocrine Tumors (NETs) | Last Active: Jun 15 2:19pm | Replies (144)Comment receiving replies
@californiazebra I see my pulmo next week to go over my latest CT. Not sure if Mayo has a definitive protocol or if it’s a case by case basis for when to intervene when they see tumor growth. I’m also not sure if they do ablation. I will ask him. Are you seen at a large teaching hospital? Honestly I’m just now getting over the shock and recovering from my surgery and ready to become proactive! I’m trying not to micromanage my condition and trust in my providers while still being an informed patient. It’s kinda a fine line for me.
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@azrosegold Good luck with your pulmonology appointment this week? Is it at Mayo in Phoenix?
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@azrosegold
Yes, I’m being seen at a university hospital. Most university hospitals and major cancer centers have neuroendocrine programs. Don’t feel like you need to get rid of every nodule. For DIPNECH you’ll mostly just monitor because you need to preserve healthy lung tissue and any removal or ablation takes some healthy tissue with it. It’s mostly about managing symptoms if you have any. Did they say you have typical carcinoids? They are slow growing and mostly stay confined.