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I was told I may have gotten MAC from swimming in a public pool,

MAC & Bronchiectasis | Last Active: 16 hours ago | Replies (19)
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Profile picture for newbird @newbird

I am newly diagnosed with MAC. Trying to decide whether to get SANS air and water purifiers, a new hot water tank and a brand new shower since mine may have mold. I will stop indoor pools. I wonder if these steps are smart, or going too far because I am overwhelmed and worried. I have no real symptoms yet, so wait and watch approach without treatment yet. Please reply.i am quite anxious. Thank you.

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Replies to "I am newly diagnosed with MAC. Trying to decide whether to get SANS air and water..."
scoop | @scoop | 20 hours ago

@newbird
Welcome to Mayo Connect but sorry to hear of the new diagnosis. One of the best defenses, I believe, is knowledge and education. Towards that end, I'm attaching a paper written by NTM guru Dr. Falkinham. Once you have a chance to read through it, post any specific questions you have about modifications you're thinking to make. Everyone here manages slightly differently, some being more risk adverse than others. What works for you might not work for someone else. Please be assured that the modifications are manageable. Take a deep breath, you've found a good place to ask questions and get support.

A very valuable video to watch: How We Should Think About Our Environment

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Reducing Exposure to Nontuberculous Mycobacteria (Reducing-Exposure-to-Nontuberculous-Mycobacteria.pdf)

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Sue, Volunteer Mentor | @sueinmn | 16 hours ago

@newbird Let me add to scoops welcome - there are thousands of us on Connect who are willing to share your journey and answer your questions.
First, you are asymptomatic so what mediical adventure led to the diagnosis? And you say you using the "wait and watch" approach - did the pulmonologist start you doing airway clearance? Do you also have bronchiectasis, asthma or COPD?
Sorry for so many questions, but we like to be able to offer our best suggestions for coping with this diagnosis, which seems overwhelming at first.

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