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Mesonephric adenocarcinoma...anyone?

Gynecologic Cancers | Last Active: 2 hours ago | Replies (6)

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Profile picture for Helen, Volunteer Mentor @naturegirl5

@bahamasgirl @kirlizee I'm relieved you found one another here on Mayo Clinic Connect. A warm welcome to both of you.

The respective cancers, as you both noted, are very rare and so I don't know of anyone else here in our Gynecological Cancers support group who has reported this. While the following members have experienced different diagnoses of gynecological cancer and treatments they can provide you with support. @gynosaur42 @mommacandy @denisestlouie @jenelleseaman

@kirlizee Did you have a look at this link that @colleenyoung recommended a few days ago? If so, did you find helpful information there?

- Tidvak (tisotumab vedotin) therapy for Metastatic Cervical Cancer https://connect.mayoclinic.org/discussion/tidvak-tisotumab-vedotin-therapy-for-metastatic-cervical-cancer/

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Replies to "@bahamasgirl @kirlizee I'm relieved you found one another here on Mayo Clinic Connect. A warm welcome..."

@naturegirl5 yes, I saw that thread, thank you. Pretty much the same as what I heard on cervical cancer subreddit...people have wildly different experiences and the bad ones seem to get posted more so we all get concerned. But it seems to work for many and I'm hoping I can be one. I'll have a scan in June after my 3rd infusion.
Thank you for the support!