@gailcha AHA! I too felt my old diagnosis of TMJ was to blame! The possibility of vision loss was the impetus for immediate prednisone. Yes, though the biopsy is considered the "gold standard" my surgeon told me 15-20% of patient's results are inconclusive. And yes, treating symptoms is a positive step.
I hope your situation continues to improve with treatment. Thx for offering your story...it's very helpful!