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Who has GCA, Giant Cell Arteritis?
Autoimmune Diseases | Last Active: 14 hours ago | Replies (10)Comment receiving replies
I had pain behind one eye for months. Went to doctor when it woke me up at night. Had been having jaw pain too but thought it was just TMJ. Been having headaches during all this time too. Meds cleared up blurry vision and jaw pain. Continue to have headaches but not as severe. Rheumatologist said biopsy not necessary as would treat symptoms anyway and they can come back false negative. Good luck!
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@gailcha AHA! I too felt my old diagnosis of TMJ was to blame! The possibility of vision loss was the impetus for immediate prednisone. Yes, though the biopsy is considered the "gold standard" my surgeon told me 15-20% of patient's results are inconclusive. And yes, treating symptoms is a positive step.
I hope your situation continues to improve with treatment. Thx for offering your story...it's very helpful!