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wendy517 avatar

Who has GCA, Giant Cell Arteritis?

Autoimmune Diseases | Last Active: 14 hours ago | Replies (10)

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Profile picture for gailcha @gailcha

I was diagnosed with GCA about a month ago. Started on 60 mg prednisone by ophthalmologist. Rheumatologist tapered down to 10 mg and added Rinvoq and methotrexate. Blurred vision improved. Biggest problem I’m having is dizziness and balance issues - affects my ability to do anything. Not sure if due to meds or GCA. Anyone else have this problem?

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Replies to "I was diagnosed with GCA about a month ago. Started on 60 mg prednisone by ophthalmologist...."

@gailcha my symptoms began with blurred/double vision, jaw pain (unable to tolerate discomfort while lying on either side of head), severe headache, chest pain etc. I had no clue what was wrong, went for 2 months. Temporal artery biopsy delayed another 3 weeks. Prednisone 60 mg tapered over 4 weeks with recurrent symptoms.
It's quite confusing to navigate this illness, isn't it. Balance and gait problems already existed for me, and im sorry you're experiencing these life-altering effects.
Plz continue to reach out for answers and support. The powerful medicine we take for relief (and its side effects) can be daunting.
Thinking if you with this morning with compassion. We're in this together!