Hello @holly93283, welcome to Mayo Connect. You are so right, no child should have to go through what your daughter has gone through and still going through. Mayo Connect is a good place to share with others that may have the same or similar health issues. I am not a medical professional and have not had any training.

Has her doctor said anything about her symptoms suddenly coming back after she had improved? I was wondering if it may have something to do with side effects of Rampanune. Mayo Clinic website lists the side effects here and there are a lot of them:
http://mayocl.in/2tKNjgY
I'm tagging other Connect members who may be able to bring in others or provide more information. @rosemarya @kanaazpereira @colleenyoung @safetyshield @LaurenSpiceland can you provide any information that might provide answers for @holly93283?

John