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Neuroendocrine Tumor - no treatment plan method
Neuroendocrine Tumors (NETs) | Last Active: 6 minutes ago | Replies (141)Comment receiving replies
My doctor has recommended Lutithera as my next treatment I am worried about the side effects and wonder if anyone has experienced this treatment? Thanks for your reply
Replies to "My doctor has recommended Lutithera as my next treatment I am worried about the side effects..."
@mcwjr189 I have had no surgeries since I was diagnosed , about a year ago I had Lutathera treatments and the 2 follow up scans showed the large tumors were shrinking and the smaller ones were no longer visible. The only side effect I had was an increase to my fatigue. I go for my one year MRI the first week of May to see if the trend is continuing.. Best wishes for a hopeful outcome for you...
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Hello @mcwjr189,
Yes, there are a number of Connect members who have had that treatment, and many with very good results. I'll invite @dbamos1945, @vinnie694, and @sophiarose to discuss their experiences with you.
Here is a link to a discussion titled,
--Interested in Hearing People's Experiences with PRRT:
https://connect.mayoclinic.org/discussion/prrt-treatment/
Did your doctor indicate why he wanted you to have PRRT? What are your questions and concerns about this treatment?