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Rituximab or Remicade for Rheumatoid Arthritis RA
Autoimmune Diseases | Last Active: 23 hours ago | Replies (28)Comment receiving replies
I haven’t looked at the cancer studies but I was told that they can affect the neurological issues. Like Parkinson’s. Horrible disease. That’s why we wait and watch. She just got out ICU for sepsis and toxic shock. Thats from
Trying the new immunosuppressants. She keeps getting infection from them and remains in long term use of steroids. Destroyed her teeth, her bones are bad and she gets terrible tears from long erm steroid use smothered is no win yet. Maybe a higher price car t will it seems like refine the neurological effects.
I am very hopeful about this therapy. It’s the first thing that anyone ever said put them in remission. Nothing does it so I wish you good luck in my daughter. Good luck in fact all of you need some luck.
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@judyresnick
To get to the right CAR-T clinical trial in Crohn's disease, you may need a referral from your daughter's gastroenterologist. To get considered by the clinical trial team, she will need to provide her records of initial diagnosis and all past treatments. They may require a letter of referral from her doctor. It is best to ask her GI doctor for CAR-T treatment or other clinical trial referral and where to go. He may be able to make all arrangements for you.
All US clinical trials are posted on http://www.clinicaltrials.gov. At this time, I could not find any CAR-T trials posted for Crohn's disease. But here is a link to the search for other clinical trials for Crohn's disease. You can see what is available in your area. Still, talking to the doctor and asking for help with finding right research opportunities may be your best shot. Good luck