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PNET: What helps with fatigue and weakness?
Neuroendocrine Tumors (NETs) | Last Active: May 8 11:44pm | Replies (28)Comment receiving replies
Diagnosed with pancreatic NET in 2023. I have fatigue much of the time, along with occasional dizziness or shortness of breath. Some medications can make the fatigue worse. I just try to get one or two things done a day and not schedule too much. I like getting home early in the evening as I know my energy drops quickly after that.
Sometimes it’s hard to get people to understand this. They tend to think if I’m not currently hospitalized that I must be cured and don’t understand my limitations.
Replies to "Diagnosed with pancreatic NET in 2023. I have fatigue much of the time, along with occasional..."
@zacharycat , exactly! We look okay on the outside, but are completely different from the inside. I am also tired most days and most of the time. Holding on until midday, but very tired in the afternoon. I had dystal pancreatectomy, splenectomy, cholecystectomy and hysterectomy, plus liver metastases - my peritoneal cavity is " really a cavity" :). It is hard from outside ppl to understand that we are still sick, even without hospitalization and visible signs...
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@zacharycat Thanks for sharing what you have experienced. I find the constant fatigue is frustrating, partly because it’s hard to explain and partly because there doesn’t seem to be any solution. It helps to hear that I’m not alone with this.