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Profile picture for Jeff Marchi @jeffmarc

@pesquallie
While your PSA is very low around 10% of prostate cancer patients produce little to no PSA.

Pain that lasts constantly is frequently from metastasis not from something else, Though it is possible.

I’ve never heard of someone having constant pain just because they were on ADT in the past, and their testosterone has not returned to normal levels.

Have you discussed this with your doctor? Have you had a PSMA PET scan? While someone may not produce PSA, they may produce PSMA. Even a CT scan might be better than nothing to try and find out what’s causing your pain.

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Replies to "@pesquallie While your PSA is very low around 10% of prostate cancer patients produce little to..."

@jeffmarc

I have had a bone and PET scan with no spread of cancer detected. Also, the level of pain and side effects has dropped significantly in the last three months which are 9 to 12 months since my 3-month Lupron shot. The only connection I can see is Lupron. I know of other people who have had similar but not as bad issues. I have other medicine reactions such as to steroids so maybe I am allergic to Lupron.