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Patience

Caregivers: Dementia | Last Active: 9 hours ago | Replies (22)

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Profile picture for moea @moea

@wctdoc1943 Thank you for your post. It resonates with me as well. Patience is very thin at our house. Add in a dose of anger, frustration and loneliness and that describes my issues. My spouse is still labeled mild AD, but I do see some negative changes in behavior lately. He is losing his ability to use his phone for texts or calls, and he never checks his emails. We had a "dust up" the other night about the temperature of the hot water from his shower. That scared me enough to think he didn't know how to regulate the temperature any longer. I have called a plumber to lower the temperature, and am suggesting my husband move his showers to the morning. Although he didn't remember the exact issue of the argument we had, it bothered him that we went to bed angry, and he apologized today. He was always the sweetest guy and this reminds me he still is that person. It can be heartbreaking to witness these changes. I vow that I will walk away the next time he shows behavior close to anger. Arguing or challenging a dementia patient is not a good idea. I know it is up to me as a care partner to change the dynamic. This is so hard and we are only human. I am much better at this when I take time for myself. My spouse does better when he spends time with other people, and exercises daily. We try to eat a very clean diet and avoid alcohol too.

@kjc48 Currently my spouse is on a maintenance dose of Lecanemab as his CT scan showed a huge decline in his amyloid plaques. I do believe based on the results that the drug keeps progression down. We do not have any data re Tau levels currently though.

Take care of yourself and thanks for listening to me...

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Replies to "@wctdoc1943 Thank you for your post. It resonates with me as well. Patience is very thin..."

@moea
Maybe we should start a music group, and call it Anger, Frustration and Loneliness, and we can all wail about these feelings and have a way to vent our strong emotions.
Tra la-la. 🎶 🎵

@moea Thank you for sharing this morning. I'm at wits end today. One o'clock in the morning, sorting through financials - the mess my husband made that cropped up yesterday - and then getting up early, to beat him from getting up, leaves a real thin window of sleep. I appreciate your telling me about the results your spouse is getting rom Lecanemab and his huge decline in amyloid plaques. That's so good. And gives me the same hope. Best, Karla

@moea Thank you for responding. All those emotions are prominent with me too. I miss having normal conversations about meaningful things. Our interactions are often confrontational or turn into confrontations. It's tricky to navigate. I have learned that walking away or at least not engaging in confrontation is the best thing for me (us???). Most of the time she quickly forgets what it was about. She threatens to move into the guest bedroom all the time and an hour later she doesn't remember why her pillow and gown are in another room (I'm not telling-LOL).