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National Jewish Health Helpful Tips and my recent experience
MAC & Bronchiectasis | Last Active: 15 hours ago | Replies (72)Comment receiving replies
I had for NJH next Sunday. I also have a problem with my doctors here in Virginia. I fired my infectious disease Doctor Who was very dismissive about everything. I am going to a new set of Pulmanologist locally now, so hopefully that will make a difference. I personally like my G.I. doctor very much, however, he is very dismissive of my “extreme“ reflux. He does not feel that it affects my lung disease. I absolutely do. I don’t see how it can’t quite honestly. I do sleep with my bed on an incline, but during the night as I move around in bed, I know that I’m not at that 30° or more angle and can’t help but feel that I am aspirating.
I will be seeing Dr. Lommatsch at NJH. Do you really think it was worth your while to go?
I know this sounds silly, but did you stay right near NJH? Is the neighborhood safe? I have read so many controversial comments about the area. Thank you so much for your post!
Replies to "I had for NJH next Sunday. I also have a problem with my doctors here in..."
@toni4501 TONY, I strongly urge you to join Lung Matters there’s a whole big thing on there that talks about the stomach issues and stuff like that in terms of relating to Mac and all that and don’t let any doctor tell you that it’s not true. I learned everything I know from Lung Matters if you go on that site and join, you will learn so much. It will change your life. I knew nothing until I went on there. The doctors taught me nothing.
@toni4501
I would encourage you to go! I feel good about my team here in Dallas but NJH started from scratch and asked questions that had never been asked before and they changed he whole direction for the better.
I stayed at one of the accommodations cited on the website. It was an extended stay suite on Virginia @ Colorado. Very convenient and safe plus I was provided with a Lyft voucher to and from each day
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@toni4501 hi toni. I will try to answer your questions. I know from belonging to Lung Matters that reflux and stuff can definitely affect your lungs because you aspirate stuff into them especially when sleeping. You probably shouldn’t eat anything after 6 PM.
I will be honest with you, but I don’t want to influence or dissuade you from going to NATIONAL JEWISH. If I had a to do again, I wouldn’t. I am blessed to have a wonderful PULMONOLOGIST here in Atlanta, Dr Swenson my entire experience at NATIONAL JEWISH was very negative. There’s a lot of things that happened there that I was not happy with and I couldn’t wait to get the hell out of there, if you want me to tell you more details write me back as far as staying in a hotel we stayed one in cherry something that was supposed to kind of be affiliated with NATIONAL JEWISH and the rooms were so dusty. I don’t think they ever change the AC Filters. We literally had to go to target and buy a little vacuum cleaner and dust vacuum the room every single day because you could write your name on the furniture and on the floor in the dust, not to mention the filthy drains that backed up hair from probably yours it was disgusting.
I didn’t know anything at first when I got this or should I say found out I had it. But the doctors at NATIONAL JEWISH didn’t teach me a damn thing and all they wanted to do was shove medicine down my throat. They spent about 1% of their time talking about clearances, which is really the most important thing you should know and do you’ve got to get that mucus out of your lungs every day because if you don’t, you’re gonna get infections plain and simple the bacteria lives in the mucus, but if it doesn’t exist in there, and you clear it out every day, they have no place to live and you can pretty much assure yourself that you will not get an infection. I can’t stress enough how important this is.
https://www.facebook.com/kelly.kat.940/videos/462355238
776400/?idorvanity=786232145610757
If you really want to clean your lungs out way down deep in the Bellows and crevices where nebulizing doesn’t reach, I suggest you look at the above video and learn how to do it. It changed my life if I can help in any way just contact me.