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I don't know what to do next - I'm tired
Autoimmune Diseases | Last Active: 1 day ago | Replies (42)Comment receiving replies
I'm a 77 year old female who has been suffering for decades, one diagnosis then no it's not that you have anxiety so I just pushed through till 5 years ago a Rheumatologist did tests and I have RA and Sjogren's plus a list of stomach problems too. I just quit going because all the meds made me sicker and the doctor wasn't a "sharer" and gave me no help at all so I do feel your pain. Doctors won't do the work it takes to figure out how to help and they mistrust everyone and you get judged when you first see the doctor, good luck.
Replies to "I'm a 77 year old female who has been suffering for decades, one diagnosis then no..."
@margaret216
Please don't dismiss all doctors as dismissive and judgmental. Doctors are capable of having the same faults as everyone else in society. You found one who works at a job. I have been lucky to have doctors who have a profession and take their Hippocratic oath seriously. If you change doctors, you may find the care and the answers that you deserve. Giving up only hurts you.
@margaret216 I Hi I am so sorry you're going through all this. I understand I have three autoimmune diseases r a Hashimoto's and now secondary Sjogren's. You have to advocate yourself You have to search on on here on YouTube on chat GBT Google get on some groups on Facebook they're very helpful. I had a lip biopsy and a blood test done for just test to see if I had Sjogren's disease. They both came back negative. I went to an ear nose and throat doctor for this. When I went to go see my rheumatologist she looked at the whole picture She looked at my blood work she looked at the other autoimmune diseases I had She looked at all of my symptoms and she said you have Sjogren's disease. I didn't want the disease I just wanted to know it was wrong with me. You have to advocate for yourself I'm 67 I am a whipper snapper when it comes to doctors not doing what they should do so I'm telling them what test and what blood test to take. I'm also telling him how it is affecting my life and it's interfering with relationships in my children I'm tired all the time I don't see anybody I'm almost like a shut-in. But now that I'm getting better I feel good about myself because I advocated for myself and I researched researched researched. Probably should get another doctor?? Good luck to you
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@margaret216 I find I have to do lots of searches on my own to formulate questions to bring to my doctor. I'm still in disagreement with her diagnosis of Relapsing polycondritis. Especially since she has never seen herself. And, she has not seen fixed drug reaction which I had confirmed years ago with a biopsy. They can look extremely similar. And both spots popped up after I carelessly too Naproxen which had been determined the source of my FDE. We have to be out advocates. I'm building a care team that includes my naturopath primary, rheumatologist, cardiologist, dietician in addition to the dermatologist.