Hello
I've inherited Lynch Syndrome, and was first dignosed with ovarian cancer back 20 years' ago, followed by colorectal cancer a couple of years' later. Had 17 years post surgeries, radiation therapy and two courses of chemotherapy free of cancer, before colerectal cancer returned necessitating a full ileostomy some 8 months' go.

I've not recovered well from that surgery, and now I've been diagnosed with Ampullary Cancer, and the Whipple procedure is not an option due to the already diminished range of body parts I have available. 🙁

There was talk of resection via laproscopy or endoscopy, but those hopes were dashed yesterday, so I'm in a holding pattern of ill-health already, although there's nothing obviously aggressive about the lesion/tumour at this stage. (Have had innumerable tests etc.)

So I'm just tuning in for hope and advice and progress reports from fellow victims of this rare form of cancer.

I'm in New Zealand (that small country of only 5 million people south east of Australia!); so fellow sufferers are likely to be few and far between. My next stop is my endoscopic specialist, and a pancreatic/liver specialist seeking to get together with a team of similarly qualified persons to see if anyone has any solutions for me. Chemotherapy and Radiation (again) hasn't yet been ruled out, although my body's in pretty bad shape, and they may be as unsuitable as the Whipple procedure.

Julie