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@lrb67, did you get the results from the biopsies in the meantime and meet with the urologist? How are you doing? What is next for you?

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Replies to "@lrb67, did you get the results from the biopsies in the meantime and meet with the..."

@colleenyoung First thank you so much for asking and the interest. That alone makes me more comfortable with my situation. I did get the results of the biopsies.
1. Left Ureteral orifice showed Papillary urothelial carcinoma High grade Non-muscle invasive
2. Urinary bladder left lateral wall also non-invasive papillary urothelial carcinoma, high grade
3 Urinary bladder, right neck showed no cancer just mild chronic inflammation from enlarged prostate

My urologist stated the cancer was still stage A (not even stage 1)

He is having me do another 6 week BCG treatment and then follow-up with 3 week maintenance BCG every 3 months for 18 months

If he gets a window with the BCG treatments he would like to do BPH ablation on my prostate. Other than that, he recommended I lose some weight (I am 5'9" and weight 235 pounds. He suggested the Mediterranean Diet.

I have been talking to my brother and sister-in-law since my brother went through bladder cancer 14 years ago. My sister-in-law suggested Mitomycen immediately after TURBT and follow-up with BCG. Their experience also included 36 months of maintenance. Small differences between our cancers though. His was Stage 1 and mine is stage A. His started with a low-grade tumor grade 1 with no mitomycen or BCG following his TURBT. 6 months later it recurred with High grade stage 1. He received MitoMycen immediately after the TURBT, did the 6 week BCG with maintenance for 36 months. Thankfully my brother has been cancer free for 10 years.