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I am 75 and have carcinoid tumors NET in lungs
Neuroendocrine Tumors (NETs) | Last Active: 15 minutes ago | Replies (72)Comment receiving replies
I’m 65 and was diagnosed with DIPNECH last summer after a tumor was found on my lower left lobe. It was a typical carcinoid and I had a wedge resection to remove it last September. I’ve had CT scans every 3 months and have lots of small NETS that they’re watching. I have no symptoms! They found the tumor on an abdominal CT scan over 12 years ago. At the time my Dr said it was nothing to worry about and was likely from an old infection. I have had several bouts of diverticulitis so the always do a CT scan to diagnose and the lung tumor was visible and growing. It wasn’t until
I was in the ER last June (for diverticulitis) when the radiologist said that tumor does not look good and insisted I get it checked out. My Drs at Mayo were able to review over 10 years of imaging showing the slow growth. Right now we’re just watching and waiting.
Replies to "I’m 65 and was diagnosed with DIPNECH last summer after a tumor was found on my..."
@azrosegold I have everything you have as well. My doctor has concluded that I need the shots for DIPNECH. I asked to be able to give myself the shots at home, until I know for certain I can stand the side-effects. So far, I am extremely tired. My doctor is already talking about going to the once a month shot in his office. I'm having doubts. If the shot is good for a month and you have any unwanted side effects, it is in you for the entire month. Has anyone else had an adverse effect to the shots?
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@azrosegold
Lucky you have no symptoms. In the 12 years it took doctors to finally diagnose my lungs full of nodules, I was also told it many times the nodules may be from a past infection. I'd always tell them if it was from a past infection, they wouldn't be growing year after year. How large was the tumor you had removed?