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What preparations do you make when travelling with epilepsy?
Epilepsy & Seizures | Last Active: 1 day ago | Replies (20)Comment receiving replies
@marianne72
@louissc
Thank you so much for sharing your travel experience in this discussion!
As @louissc wisely said, our confidence to handle a trip is as important as our doctor's opinion. Preparing my trip to Uruguay with care was very important to also give myself confidence — approximately 2.5 hours from São Paulo city, where I live.
On this trip, I also used the lane for passengers who require special assistance, and the queue was normally very short. Though I didn't look like someone with special assistance needs — epilepsy can many times be a hidden condition — I wasn't at all embarrassed to make use of it.
Curiosity @louissc: why did you have a 2hr car ride after landing? Is Taipei's airport that far from the city?
I'll update you very soon with more details on my first plane trip after some epilepsy complications I had in December 2024. One thing I can already share with you is that this trip gave me back my confidence for future travels. 😊
Chris
Replies to "@marianne72 @louissc Thank you so much for sharing your travel experience in this discussion! As @louissc..."
Hi Chris,
The world still needs to be aware of the medical condition which is epilepsy. Over in this country, 150 are newly diagnosed every year and together with their family members, the numbers of affected citizens start to add up pretty fast given our population figure.
I took that 2.5hrs trip the day after I landed so I wasn’t too tired. It’s to visit an old business associate (now in his late 80s) and I should be the one making the trip rather than him. We met in another city. As for the distance between the airport and the city centre, its approx 1 hr journey during off peak traffic.
I just told myself during my trip that time is for me to chill and relax. I believe your trip will go well.
Cheers,
Louis
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@santosha excited to learn more about how you managed life on your trip! It’s courageous to set out in new ways after so many adjustments and changes.
I agree about epilepsy being often a hidden condition, then it can also become hyper-visible! I’m finding that people-myself included-have a lot to learn and unlearn about this condition.
Hearing about others’ perspectives and experiences in different places, ages, and circumstances is educational and usually encouraging.
I’m learning to appreciate what I have and can accept it more fully, knowing how others suffer in ways I do not. Realizing how people all over the world have epilepsy has enlightened me.