Connect
← Return to National Jewish Health Helpful Tips and my recent experience
Discussion
National Jewish Health Helpful Tips and my recent experience
MAC & Bronchiectasis | Last Active: 2 hours ago | Replies (49)Comment receiving replies
I have MAC, BE, maybe COPD.
Found this out little by little.
Different information from different doctors.
I had to go off meds because WBC became so low.
NP called me after blood test and said best to stop.
My Pulmonologist said which antibiotic caused the problem?
Try one at time.
ID doctor said no they have to be taken together.
This is confusing me because on this forum a lot of you have started them one at a time.
I noticed some people here have to stop a certain antibiotic yet keep taking the other antibiotics.
If I mention Mayo forum I get eye rolls.
The egos of professionals are fragile.
Replies to "I have MAC, BE, maybe COPD. Found this out little by little. Different information from different..."
@sheila7a sheila join Lung Matters and follow their protocol. It saved my life not the doctors.
Connect
@sheila7a We are all different and as well different doctors, medical people, all have their own thoughts and beliefs just like us.
I go with what I feel is best for me after listening to them, researching, listening to others experiences etc.. however, I am 83 and truly believe with all the decisions I made in life for me medically, so far, the decisions were right for me.
If you feel you know your body well, how it has done and reacted, etc., you might go with your gut opinion for yourself????
Barbara